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A lil Extra Amor

Navigating through life with an unexpected diagnosis

Welcome to A LIL EXTRA AMOR. I’m thrilled you’re here—because I have so much I want to share with you. I’m here to share our life & journey through parenthood raising our daughter with an extra chromosome, our struggles with infertility, parenthood, faith, pursuing dreams and goals, and helping people transition to a toxin free home and life. My goal is to connect with others and provide comfort and insight from our experiences to those that are just starting this journey as well as with people from all different walks of life.

 

MY STORY

Hi! My name is Vanessa and I'm a 26 year old mother to my daughter Amor and my son Elias. I am also the most lucky woman in the world to be a wife to my amazing husband Christopher. The events that led up to making my own blog was not an easy journey. There was a lot of pain and tears to get to this point in my journey of motherhood.  I grew up knowing exactly the kind of life I wanted for myself. I knew that I wanted to be a mother more than anything and to one day find the love of my life and grow old together. When I met Christopher I was 15 and he had just moved into the house next to ours. He was the boy next door and I fell in love with him right away. Chris and I dated for 6 years before we finally married in October of 2015. We tried to grow our family even before the wedding but it just wasn't working out. I felt a pit in my stomach for as long as I could remember that something was wrong with me. Every month I would fail to conceive or even have a normal cycle at all. I would sometimes go 4 months without any cycles. I did not know what was causing the list of issues that I was having until I was diagnosed with PCOS (Polyscystic Ovarian Syndrome). Thus begins the first devastating news that I had ever experienced in my life. It is very difficult for women with my condition to become pregnant. After 3 years of trying we finally conceived with our first try of minimal fertility intervention. I could not believe that I was finally pregnant! During my entire pregnancy I felt like I was going to wake up from a dream. I had never felt more beautiful or whole in my life. I loved to see my belly grow and learn about all the new things our baby girl was starting to do in my womb. I would have never thought in a million years that the day I had been waiting my whole life for would actually be one of the worst days of my life. I don't mean to be negative,it was a great day as well because we met our daughter, but it was the most terrifying, and horrible experience that I have ever been through. My birth story is the very first blog post on my website. If you would like to read about that day please scroll through until you find that post. I wrote it shortly after Amor's pediatrician called me with the results of her Karyotype. It was my first announcement to the world that our baby girl was blessed with an extra chromosome. I initially made my blog because I wanted to be a resource for families that were struggling as much as we were with coming to terms with this shocking news, and hopefully bring some peace in seeing what life is really like raising a child with Down Syndrome. But there is so much more that I want to shed light on. I am here to share our struggles with infertility, and the isolation and pain it has caused in my life. I want to write about the stress and the pressure to be the best advocate for my daughter every time I step outside of my front door, when some days all I just want to be is her mom. I want to share the good and the bad experiences I have had with strangers when they recognize that Amor has Down Syndrome, and the inner strength that I have had to summon way past my comfort zone in order to be her protector. I believe that there is a purpose to the hardships that not only we as a family have gone through but for me as a woman with all the expectations that are set by society and within myself, that sharing all of it can help me and others as well. I am so thankful that you are here to read what I have to say. Thank you!

 

May 28, 2020

Wow. It has been a long time since I have sat down to write on my blog. There have been so many moments over the past year where I told myself that I was going to really set the time for myself to dive more into keeping this blog with frequent content. I am sorry to th...

August 14, 2018






Dear Dad,
You & Mommy waited for many years wishing and praying for a little baby of your own. During that time God was creating and molding me into exactly who both your hearts would need to grow with through this life time. I know you guys were so anxious to meet me a...

July 19, 2018

Just when we thought our routine would get back on track someone brought something up to me on facebook that really altered my motherhood experience. I posted a video of Amor eating her first taste of sweet potatoes and a fellow DS mama mentioned that the way she was m...

July 19, 2018


It has been quite some time since I’ve written.
I found myself needing a serious break from being the "down syndrome advocate" to just being her mom. It felt like since the minute we were given her diagnosis I have been working on everything to get her the services sh...